(Alexandria, VA)- The National Alliance for Care at Home (the Alliance) published the 2025 Pediatric Facts and Figures, a report that provides an overview of pediatric palliative care and hospice in the United States and presents the results of a national survey of providers. The survey that informed the report had a response rate of 56% and yielded 295 entries representing distinct pediatric programs. Responses represent all 50 states and Washington, DC, and the survey was active from May through August of 2024. The report takes a close look at topics like pediatric patient characteristics, location and access to care, reimbursement for care, provider characteristics, barriers and facilitators to care, and concurrent care.
Palliative care is a core component of the care at home continuum, providing care that is patient-centered and interdisciplinary, and offering pain and symptom management, support for all members of the family, and a focus of quality of life as defined by the patient and family. While traditional hospice care is reserved for patients nearing the end of life, pediatric palliative care is unique in that it can be provided at any stage of a serious illness, alongside curative or active treatments. This distinction allows patients and families to benefit from comprehensive support much earlier in the disease journey, without having to forgo other medical care. The focus of this report is to highlight the role of pediatric palliative and hospice care in the U.S.
“Pediatric palliative and hospice care represents some of the most profound and important work happening in the care at home space, yet our data and understanding of the sector as a whole is limited. The 2025 Pediatric Facts and Figures report gives our community a clearer picture of who is being served, where gaps remain, and what providers need to deliver truly patient- and family-centered care during some of life’s most difficult moments,” said Jennifer Sheets, CEO of the Alliance. “We look forward to continuing our focus on palliative care research and data sharing through our partnership with the Research Institute for Home Care and are grateful to the Alliance’s Pediatric Work Group for their work in bringing this report to life.”
The Alliance and the Institute remain committed to working together to engage with providers, policymakers, and the public to build a greater understanding of pediatric palliative care and hospice. The 2025 Pediatric Facts and Figures report is available online.
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About the National Alliance for Care at Home
The National Alliance for Care at Home (the Alliance) is the leading authority in advancing care in the home. We envision an America where everyone has access to the highest quality, person-centered healthcare wherever they call home. Through advocacy, education, and convening, we connect providers and stakeholders to strengthen care delivery across the home-based care continuum — spanning home care, home health, hospice, palliative care, and Medicaid home and community-based services. Learn more at www.AllianceForCareAtHome.org.
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Hannah Kristan | 202-355-1647