2025 Pediatric Facts and Figures Report

About This Report

The National Alliance for Care at Home Pediatric Facts and Figures report provides an overview of pediatric palliative care and hospice in the United States and presents the results of a national survey of providers. This survey had a response rate of 56% and yielded 295 entries representing distinct pediatric programs. Responses represent all 50 states and Washington, DC. The survey was active from May through August of 2024.

This overview provides specific information on the following, including a new section focused on concurrent care:

• Pediatric patient characteristics
• Location and access to care
• Reimbursement for care
• Provider characteristics
• Barriers and facilitators to care

The tenets of palliative care remain the cornerstone of all care: patient-centered, interdisciplinary approach; expert pain and symptom management; support for all members of the family; and a focus on quality of life as defined by the patient and family. These were articulated in 2013 and reaffirmed in 2019.

The purpose of this report is to highlight the pediatric palliative and hospice care in the U.S. as reported by the agencies responding to the national survey distributed by the Alliance (and formerly the National Hospice and Palliative Care Organization) and by our partner organizations at the National Coalition for Hospice and Palliative Care in 2024.